Tuesday, December 12, 2006

Need a little help from my friends

Totally of the subject of knitting or Gilmore Girls but i need some help.
I have something called Arnold Chiari Malformation. It is a rare brain disorder that causes your cerebellum to move down the hole in the base of the skull and into your neck. Basically my brain is to big for my head. I recently had a surgery called a decompression surgery. They made the hole in my skull bigger and took out part of my top vertibre. I'm feeling much better but there is no known cure so i could have to have this surgery many more times though out my life. So this is where you guys come in. I need people to sign a petition demanding funding for research. Little is known about this disorder and even less is known about how to care for us. Please go to this link and sign. http://www.petitiononline.com/ACMfunds/
Even though it is considered rare more and more people are finding out they suffer from this too. Many doctors have never even heard of this and will tell people who have it that they are crazy and it's all a mental problem. Well it is real, very real for many people. please help. thanks so much mandie

for more info on chiari please go to

and dont forget about

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